Today I finally gave up and went to my doctor and he said a lot of things that I already knew and then he put me on a bigger dose of prednisone than I've ever been on before. It's a month long burst and then a taper down to 10 mg a day, where he may want to keep me again. I was on prednisone for 4+ years. I got very fat. Big bursts make me emotional and brittle and ..... hungry. Although I dread this more than anything, I agree that it's necessary. I can't go on physically the way I've been the past two months or more. So I'll give this a chance. And then he's changing one of my drugs because he now believes that rather than random nerve pain I have Trigeminal Neuralgia on top of the peripheral neuropathy in my face and mouth.
So if I sound unbalanced it's because my meds are being played with and I'm hungry and angry. I apologize in advance in case I make some snippy comment and click the "post" button without thinking.
I think there needs to be a patron saint of people who are dependent on medications that are constantly being juggled by various medical folks. It would have to be a long-suffering saint, with patience and slow to react. Obviously, the saint would quilt.
Sunny