I'm back from Seattle. My appointment at Swedish Hospital's Pain Clinic was early in the week and DH and I spent the rest of the week enjoying being away from home and taking in the (very fattening) food of Seattle. Yum!
Well I have returned hopeful. For the first time in 6 years I have true hope that this beast that has eaten my life may be pushed back to the margins, at least some of the time. The doctor spent an hour with me. He listened. Really listened. And he obviously knew what I was describing. He sent me home with three prescriptions, one for a topical anesthesia patch, another for a new bottle of pills that I will start slowly, slowly and work up to the full dose in a month. It's a drug that has had some success in treating Trigeminal Neuralgia. But the biggest surprise came in a little tube of cream. It's a medication that can be taken in pill form. But the cream allows me to put it on my skin precisely on the trigger points on my face and behind my ear. Wow. Wow. Wow. I nearly cried. Suddenly I realized that 'other' parts of my face were hurting. The 'regular' pain I have was so loud and I didn't every 'hear' the other stuff. So I tracked down trigger points for the new pain and smeared on a little bit of the stuff. Wow. Wow. Wow.
It's not 100%. It doesn't last too terribly long. And I'm certain there are side effects and bad things that I will learn as soon as I read the cautionary insert that came with the little tube. But for now, I only know that for two days I was able to enjoy my life. We walked, shopped, drove, ate, laughed, sweated in record heat, talked, laughed, planned, and enjoyed life like a normal pair of people. Yes, I hurt. But it was just pain, not the roaring, deafening, defeating onslaught of pain that I almost always carry with me.
Praise God, I have hope. I believe that I can push my pain levels back
-- dare I say this? --- maybe by half. I believe I will be able to travel a bit again. I believe that I will no longer have to shake despair out of my hair every morning when I get out of bed.
So many of you have helped me in so many ways. You've prayed for me and supported me and loved me.
Thank you, Sunny