OT: More steroids ...... I'm so miserable and sad

I have only just lost most of the weight I gained during the two months I was on steroids. A big chunk of it went straight to the 'buffalo hump' on the back of my neck. It's ugly and there is no way to disguise it. A scarf just makes it look that much bigger. Took me almost 2 years off steroids before to get rid of most of that horrible hump. I feel so humiliated. Everybody who looks at me sees that hump. At its biggest a few years back, it was starting to push my neck forward.

I asked for an appetite suppressant, and the doctor just smiled and shook his head. There are no other drugs to stop what's going on with my body, at least drugs that don't have horrifying side effects.

yes, I'm feeling sorry for myself. A big ol' pity party is what I've got going. Gads, I'd gotten back down to a size 12, but then over the two months I was back on prednisone I went back up to a 14, and that's where I am now. If I can't find someway to stitch my mouth shut, I 'll be in 16 in no time. When all this started 6 or so years ago, I was a size 10 and that felt big. And it's not just eating too much. Steroids change my metabolism and even normal eating sends fat to the hump on my back. I have to keep my calorie intake below 1000 calories a day to avoid gaining weight. And folks, I'm not that strong. Not with the cravings that steroids bring on.

I can't stop crying. I'm having a hard time with this. Everything is rough right now. So much pressure and stress and tension in the house. And now I have to go back on elevated dose of steroids. I feel pretty hopeless right now. Last year was sooooo bad and I really thought this year would have to be better. But right now, it just feels like it's getting worse and worse.

I could use a prayer or two or a good thought.

Sunny trying not to be a weak sister

Reply to
Sunny
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Well. Well, well. Sunny, I just can't think of one happy or encouraging thing to say to you. Not one. What a revolting development. So. Failing that, a Pity Party is just what we'll have. We will need refreshments and entertainment. What sounds good? Polly

"Sunny" I have only just lost most of the weight I gained during the two

Reply to
Polly Esther

((((((Sunny))))))

Prayers that they find you a viable solution soonest.

Reply to
Kate XXXXXX

Sunny...........that just sucks! I'm sorry. KJ

Reply to
Kathyl

Sunny, I wish there were words that could help. You certainly have every reason to feel miserable and it's frustrating not to be able to offer up any good suggestions! I do know that 1000 calories a day isn't enough for you to get the nutrition you need. Is your eating controlled by any allergies or medical conditions? If not, you can eat lots and lots of green vegetables without worrying about gaining weight from them, and they do help fill you up, especially things like broccoli and green beans. Fruit is also good, especially cut up in some low-fat yogurt and sprinkled with a few walnuts and pecans. Limit your fatty meats, stick to whole grains and stay away from sugar and processed starchy foods. BUT....if you have medical limitations, you might not even be able to do this.

Sending good vibes your way....

Reply to
CaroleD

We'll have some cheese with our whine. :-) You're on my prayer list, Sunny.

Sherry

Reply to
Sherry

Sunny wrote:

I don't know why, but drug weight is always harder to take off than oreo weight. Don't you make yourself feel bad because drugs plumped you up a bit. It is so not your fault! I am still carting around weight from Zyprexa some years back. My doctor didn't want to take me off it. He took me off just about everything else he had prescribed for fear that liver damage from them had caused the weight gain. Meantime in addition to loading gobs of weight onto me, the zyprexa turned me into the psycho bitch from hell. You know, everybody on the planet lost about 20 IQ points and was being intentionally dense just to annoy? Sort of like PMS on steroids (no allusion intended). My entire family was considering locking me in a closet until the drugs wore off, and taking out a hit on the shrink. I survived, they survived, by a miracle the doctor survived, but I still have weight to lose. I gained over 50 pounds taking that stuff. The weight gain stopped when the drug was stopped, but thanks to a very efficient metabolism it is a bear for me to lose weight. Eating practically nothing my weight does not change. It takes a lot of exercise and eating practically nothing for me to lose weight. At that it is easier to tend my diet towards protein and exercise til I drop consistently. Then I put on muscle fairly quickly which seems to encourage loss of fat. Everybody is different like that. Some people bounce up and down easily. Some, like me, very nearly need an act of congress and a crowbar to alter their weight. Do what you can, stay healthy, and don't fret if you hit size 16. For a very long time (back when sizes actually were standardized) 16 was average for american women (UK 12). Nowdays sizes are meaningless. You could go shopping and find a size 3 that fits, or in a different shop you might need a 22. Be healthy, don't be a size.

NightMist

Reply to
NightMist

There si nothing weak about you sister!!!!

And there is nothing wrong with a pity party now and then. A good cry is calming and helps to put things in perspective.

All I can do is echo what others have already said; size ain't the be all end all.

You WILL get through this, with or without the buffalo hump.

My thoughts are SO with you

Claudia

Reply to
claudia

Oh Sunny, I am sorry to read this.

My prayers and comforting hugs on the way.

Reply to
DiMa

Have you thought that a lot of the excess weight might be water rather than fat? Take a look at the Waterfall Diet, and see what you think...

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NOT saying it's a miracle cure (It certainly isn't for me), but just that it's worth considering.

Reply to
Kate XXXXXX

Oh I soooo understand. {{{hugs}}}

Karen, Queen of Squishies

Reply to
Karen, Queen of Squishies

Hugs and positive thoughts are on their way! I think you've earned a quick-pity-party for what you've been through! After the party, tho, just be positive about yourself - a dress size number doesn't count! It's who you really are that's important. It's the medicine, NOT you! You can't change that on steroids, but do try like HE// to stay on the bright positive side. Will keep you in my thoughts! You'll get through this. ME-Judy

Reply to
ME-Judy

Hey, what are cyber-friends for, but to be there in the good times and the not-so-good?

I can sympathize with the steroids. I was on just a six-day declining course of Prednisone (for asthmatic bronchitis), and the doctor warned me to watch my appetite. As for crying all the time, if I recall correctly, one of the possible side effects of steroids is depression and mood changes. So it really IS the meds, and the stress at home doesn't help.

Hugs & Prayers, Frances

Reply to
SingerMom

So sorry you're going through this. Prayers--and good thoughts--on their way to you from Indiana!

--Heidi

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Reply to
heidi (was rabbit2b)

Thank you for all the support. I'm working hard on keeping a good attitude. Not easy right now, but I promise I'm trying. I'm going to spend some time finishing a couple WIP's. I do drop by most days, but I don't always reply or post. But I'm thinking about all of you and appreciating the support.

Hugs to all, Sunny

Reply to
Sunny

Reply to
Taria

Prayers are coming your way for strength and inner peace. Part of my chemotherapy 'cocktail' last year included steroids, and while nothing in my body hurt (that was the only good part!) inlcuding my bad hip, I gained over 20 pounds during the time I was on them. It has been a struggle to loose the weight since....I've got about 5 more pounds to go to get to my pre-treatment size.

I don't know if this will work for you but when I was going through the worst of it we stocked up on baby carrots, celery, apples, dried fruit, etc, so when I got that urge to eat I'd give in but at least ate stuff that wasn't all that bad. Keep those chips, ice cream and cookies out of the house!

-Irene

Reply to
IMS

You know, Irene, that's one thing that makes this so hard .... I've got really bad gastric reflux, which is exacerbated by the steroids and by the disease itself, which destroys the cells the produce saliva, leaving me short of one of the key components of digestion. Raw fruit and veggies almost kill me. It hits my esophagus like broken glass.

Sunny

Reply to
Sunny

Sunny, I'm the same way. My Dr. gave me a digestive enzyme that has really helped. Just a thought.

Karen, Queen of Squishies

Reply to
Karen, Queen of Squishies

Sunny, that must be dreadful. My SO and the wife of a good friend (Crohn's disease and lupus, respectively) have had to spend some time on prednisone, and I know it's awful. My SO is one of those people who just never complains -- he drives me nuts sometimes with that stiff upper lip of is! -- but he really suffered with that stuff -- weight gain and joint pain.

If it's any comfort, perimenopause just about killed me, and I gained a good

60 pounds. My self-esteem is in the toilet. And now I'm taking a medication that has a side-effect of weight gain. I cry when I look in the mirror, some days. I used to be a practicing lawyer with a very good wardrobe, and it's all in storage now. I wear cheap, baggy junk.

We have just got to find some way to move ahead with some enjoyment of life. It's hard some days. I just take it one day at a time; I try to stay busy and not fret just one day at a time. It's easier said than done.

Lots of good thoughts your way, Sunny. Every time I look at myself in the mirror and go, "yech," I'm going to think of you and think, "I'm going to try to buck up and do whatever it is I'm supposed to do, if I can figure it out, and maybe Sunny can too." Let me know if you find that miraculous attitude adjustment that seems to be the key to what makes some people keep going. It's like trying to find a light switch in a darkened room sometimes.

ep

Reply to
Edna Pearl

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