My son (in Kansas City area) has HHT, as do many members of our family (including my husband, another child, and three of our grandchildren). Scott has been working for a couple of years to get ready to climb Mt. Kilimanjaro, a lifelong dream, which is quite a 'feat' for someone with HHT. His goal is to raise funds and awareness, as well as to reinforce his belief that he can do anything he sets his mind and heart on doing!
I am including some information about his climb and HHT, and have intentionally NOT included the link for fundraising (if anyone wants it, please email me privately). I WILL include the link to find out more about HHT:
Gwen (proud Mom in SE Pennsylvania) =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D= =3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D=3D
Climbing for HHT Awareness
Scott Olitsky (front) on Mt Whitney with friend David Coats
Scott Olitsky climbs for HHT
Mt. Kilimanjaro, in north-eastern Tanzania, reaches 19,340 feet and is one of the seven summits; the highest peak on each of the seven continents. You would not expect to find someone with Hereditary Hemorrhagic Telangiectasia standing on the summit but that is exactly where Scott Olitsky plans to be on February 26, 2009.
What is Hereditary Hemorrhagic Telangietasia (HHT)?
It=92s hard to spell, impossible to pronounce, and can be a Silent Killer.
HHT is a long neglected national health problem that affects 1 in 5000 people or 75,000 United States citizens HHT is an inherited blood vessel disorder that affects blood vessels in the skin, lungs, brain, liver, nose, and gastrointestinal system HHT can result in stroke, hemorrhage, and death
20% of those affected by HHT will become disabled or die prematurelyOn February 19, 2009, Scott sets out on a nine day route to the top of Mt. Kilimanjaro with two of his good friends. On the last night, he will sleep at 18,000 feet where the temperature is likely to be below zero.
Why is Scott climbing Mt. Kilimanjaro?
Scott is part of a family of five generations of HHT patients, including his three children. Scott's hope is that his climb up Mt. Kilimanjaro will help to increase the awareness of HHT. Currently, 9 out of 10 of the HHT population (68,000 US citizens) are not yet diagnosed due to widespread lack of knowledge by medical professionals and, therefore, are at risk of stroke, hemorrhage, and death.
Scott's climb will hopefully highlight the good news. HHT tragedies can be prevented through early diagnosis and treatment.