Bead Insanity (and not in a good way)

Kathy,

I've e-mailed you, so let me know if you don't get it. You don't need to make the necklace for that tree bead.

Take care of yourself!

All I need from you is you to feel better and pain free for as long as possible. Big bug hugs.

KATHY!

now WAIT A MINUTE...

I thought you had a pain clinic doctor who said that this "no meds" thing WOULD NOT HAPPEN AGAIN!

sounds like time to kick some medical BUTTS to me... grrrrrrrrrrrr

Cheryl DRAGON BEADS Flameworked beads and glass

Dear Kathy!

Your are describing pain related Depression. It's a real double whammy. As if the pain wasn't enough.

The lack of room in your brain for your usual productivity is probably caused by the amount of brain activities it takes to process the pain.

Always remember that it's the quality of your thoughts and not the productivity of your hands that makes you so valuable.

I hope things improve. Wish I could do something for you. Ginkgo is good for increasing circulation to your brain. More oxygen, more thinking. Also keep a close eye on female hormones. They often effect depression too.

Tina

I worry about you so much, Kathy!

KATHYYYYYYY!!!!!

Dammit, girl, this is NOT supposed to happen. (And yes, this is an official Cheryl me-too letter). You WILL get on the phone first thing Tuesday, you WILL call each and every doctor, and you WILL tell them how long you've been without meds and exactly how it's making you feel!!!! Sheesh, this isn't supposed to happen! I thought your primary promised not to do this to you anymore. I'm a firm believer in continuity, not changing horses midstream, etc, but geez, he's dropping the ball...maybe it's time to find a more responsive doc.

Sending good vibes your way and VERY CRANKY ones your docs ways.

KarenK

vj found this in rec.crafts.beads, from "Karen_AZ" :

]maybe it's time to find a more ]responsive doc.

A-MEN, and me, too, Kathy!!!!!!! either that, or they all need a conference - all of them together in one room WITH you and Bob!!!!!

for god's sake . . . . don't let them do this to you!

and i wouldn't wait for Tuesday!

See, I was always staggered by your output. I can hardly even start a piece. I'm so sorry this has happened to you. I wouldn't wish it on anyone.

rather summery necklace by Christmas.

Sooz To live a creative life, we must lose our fear of being wrong. ~~Joseph Chilton Pearce

Wow, you put it into words! That's GOOD, actually. I've been trying to describe that and haven't been able to.

I wish I could help. :-(

Oh jeez, I keep meaning to post like this too. I forget what I've promised people. It just flies right out of my mind. ~~ Sooz To live a creative life, we must lose our fear of being wrong. ~~Joseph Chilton Pearce

Can Bob do it? The reason I ask is this:: sometimes the doctors just htink we want a fix. If the husbo calls, they take it more seriously. (Idiots) Give this a try. ~~ Sooz To live a creative life, we must lose our fear of being wrong. ~~Joseph Chilton Pearce

I totally agree with Karen and Cheryl. Do NOT let them drop the ball on you. You know you have to be your strongest advocate. This is outrageous. If you can't handle this, call me and *I* will speak to these fricken doctors.

Blast them and their cautious little careers anyway.

Cheri - steaming mad

You need a little pick-me-up, Sooz and I have just the ticket. It's one of those things you're a "ho" for, do you want to know or do you want to be surprised?

With all due respect to Tina, don't take the gingko unless all of your doctors have given you the okay to do so. A lot of the natural products we take can have an adverse reaction with prescribed drugs.

and i wouldn't wait for Tuesday! ?

AHH VICKI has it right

didn't LAST TIME come about because you took a TRIP TO THE ER...and the ER doc was pissed off at your primary for not treating you...

call the ER and see if that nice ER doc is on duty this weekend (her's hoping she is..) I'm sure she'd love to chew the men out again... . go to the ER woman - demand meds!!!

Cheryl DRAGON BEADS Flameworked beads and glass

Excuse me, but this is nonsense. A pain specialist can prescribe anything in any amount that won't actually kill you, at any time. If yours won't, get a new Dr.! There is no reason for you to be in pain. You don't have to accept this. Either complain loud and long enough that you get what you need, or get a different Dr. As in now. My physical condition is no where near as bad as yours and I get 15 100mcg Duragesic patches per month, every month. Plus 120 10mg vicoden. Every month. Nobody is losing their license. The Dr. does not have a problem prescribing these things. If I din't have the drugs I would have killed myself years ago because the pain was just too much. You do NOT have to take this. Find a Dr. that will get relief for you and don't stop until you do. You deserve a life that is as close to normal as can be. You have that right and there is no law saying they can deny it to you. Or even that they should deny it to you. Please, stand up for yourself and get what you need. Your family and your life are waiting for you. Take back what's yours.

You're right, especially if you have a complex medical routine, like Kathy does.

Though I don't think doctors necessarily are the All Wise Ones regarding herbs, and sometimes even meds.

Tina

No they aren't but Kathy's situation is so critical that she needs to make sure everyone is current on everything she's taking. My heart breaks when I think of what she has to endure.

vj found this in rec.crafts.beads, from "Barbara Otterson" :

]Excuse me, but this is nonsense.

A-MEN! thanks for saying that, Barbara!

On Sun, 5 Sep 2004 23:10:48 -0400, JoAnn Paules wrote (in message ):

Don't worry for me. Despite my health, I'm a very happy person. I have a great family, an extended group of friends, all the things I need, and some of the things I want.

I get to write stories, and goof around with the little dog, and I know I'll be able to make beautiful jewelry again real soon. I have a lot better life than most, and I know it. The pain sucks, but it'll be overcome - it's just a matter of time.

Bob has reached his limit, and plans to be at my primary care doctor's office first thing Tuesday morning. I suspect I'll need a new primary care doctor after that, but at this point, I really don't care. We have a call into the Physiatrist, who was underwhelmed by the pain clinic, and said, "If these people aren't going to treat you properly, I want to send you to another clinic who will." (So we'll find out the name of another clinic)

Bob is also aiming for the pain clinic - they're fine for shooting steroids into my spine at X thousand dollars a pop, but they don't seem to want to do anything further. If it's only an injection clinic, then the heck with them - that's not the multi-modal approach I was offered. We think a different pain clinic is in order.

We'll take action on this - we don't really have any other choice.

Kathy N-V

P.S.: At the cookout yesterday, all the kids wanted to make sure that I was all right, and that I didn't need anything. Of course, most of them were high school boys, and being caught acting like a concerned human being is a No Go.

So these great big boys kept coming in from playing street hockey and sidling up to me, trying to look invisible. "Kathy, you don't need anything, do you? 'Cause if you, I can get it for you."

It would have been cute if they weren't all six feet tall looking a lot older than fifteen. They kept me in Diet Cokes (my cup never got a chance to get even half empty), made sure I had mustard for my hot dog, and brought me lots of fruit salad (they all know I like it). I got a chance to reflect on what wonderful kids they are, and of course to pass out hugs. The boys all act embarrassed, but I've noticed that they're never the ones to pull away first.