OT More on the NightMist Saga

What a nightmare Nightmist! I hope it's just fibroids as well and I hope they can get a result for you asap, so you're not sitting in limbo waiting to hear.

Pauline Northern California

Phew! I'd have been gnawing the leg off any passing stranger that didn't move fast enough by then! Have they any idea how you got so anemic? I thought you had a fairly well balanced diet... or do they think it might be something to do with the mass?

Oh, this, so much! Whatever gods they are better be working hard on this, or there will b some serious hell to pay!

I'll bet. Sleep well, love, and keep us posted. We are all keeping you close over this one. And good luck on Tuedsy. Thinking of you will keep me grounded over the latest Hairy Eyeball examination. Back to the Moorfield for a check-up.

I am glad to know that you are getting some medical attention. Fingers crossed for a quick diagnosis and effective trerament plan.

Mary in Rock Island IL

Oh my! What an ordeal. I'm rooting for the least of these three evils, and that they narrow it down quickly. I think the wait is the worst part.

I know about the doctors who check on you so often that you get no sleep. Take care of yourself, and make sure you are looked after at home! No running around trying to look after everyone else, seriously, get some rest.

Much love from Scotland, Jo

My Wings are on their way. I'm glad they DID the tests pronto instead of having you come back come back come back to each Dr on their schedule. Sometimes, those Drs do get it right. Hope this next set are just as persistent and you're better than before.

Know what very anemic is....only had it once but was strictly informed that RED MEAT/high protein would be a staple in my diet the rest of my life. NEVER had it as a problem since.

Butterfly ((((HUGS))))

I have had just the opposite experience with anemia. I used to be chronically anemic, then I went vegetarian and from then until now it hasn't been a problem. Dry beans are an excellent source of iron and they make up a large part of our diet. If I were an ignorant vegetarian it would very likely be a problem, but we actually studied the nutrition of it when we made the leap.

My current troubles with it are very likely the result of several different things that have nothing to do with my actual diet. I will give more details in my response to Kate.

*basking in Butterfly hugs* mmmm...I needed that Thanks :)

NightMist

They didn't suggest a cause, they were too busy freaking out. Though they wrote me some scripts that make me think that they are in agreement with me about the causes. My theory is it is the stress on my body combined with my mutation. At the base of it the mutation causes insufficiency of the folic aid metabolism. If your body is shorted on folic acid you tend to get what is called folic acid deficient anemia. You can sit and gnaw on a railroad spike all day and the iron won't help because without enough folic acid your body will not use it properly. Combine that with the facts that my insides are squished up enough that I cannot eat a proper meal at a go, and during my cycles I have been bleeding hugely, and you have trouble. I have already been supplementing both folic acid (at a previously prescribed level, a whole milligram daily), and iron. The doctors doubled my folic acid supplement, and hugely multiplied the iron.

Hey best of luck with that eyeball! Eyes are serious business when something goes wrong, especially when you use them as intensely as you do!

NightMist

NM, that sounds very similar to what the situation was with my fibroids. They couldn't do ultrasound or pelvic because they were so huge. The anemia was so bad the dr didn't understand how I was working or even out of bed. And then they told me if I had a car accident, I would never make it to the hospital. When they did the surgery [after

3 months of trying to get me into medical menopause], the fibroids weighed 12 pounds.

Really h> >

Here's hoping for the fibroids and your quick and complete recovery.

Hang in there.

Claudia

I have two fibroids that gave me hell. The little pests are about 2 cm in size. I can't imagine a 12 lb one. Bled like crazy, was anemic and finally was able to go to the doctor for it. We didn't have insurance and I thought I was in perimenopause.

This about 9 or 10 years ago. So at 52 I am still on birth control pills to keep the fibroids under control. I still don't have any signs of perimenopause.

Mary Helen in Arizona

I am mostly doing OK on the TLC front. At home I am being treated like I am made of glass. Even the hospital was treating me like a fragile flower.

It is driving me bonkers! A little bit of that is nice now and again, but I just can't take it for long. I tell my DH that if he just gives me a minute I will manage whatever by myself, and he gives me an evil grin and says "Suffer Baby!" then helps me or does it for me anyway.

Honestly, I can walk to the bathroom all by myself without anybody hovering. If I survive this fussing I can survive anything.

NightMist

If I survive this fussing I can survive anything.

Goodness anyone would be exhausted after all that! No wonder you need a nap.

Prayers and positive vibes are being sent that those fibroids are the culpret. And hugs, of course!!

-Irene

Thanks, dearest! be safe...

Oh. My! I just now saw this, and your other post about your Dad, and your siblings. So add my prayers and hugs to everyone else's that I'm sure were cyber-sent to you. And adding my own AGH!! also.

Karen, Queen of Squishies

(((( Nightmist )))))) Oh baby, you have a wonderful attitude for having bee= n through the wringer. You're in my prayers and thoughts and good energy se= ndings and everything else. We will simply NOT entertain a thought that thi= s might be anything serious. Of course the outcome will be good. And rememb= er that you are held close in prayer and love through it all.

Hugs, Sunny (tell your man that you are both in my prayers -- he needs it as much as yo= u do)

NM, Sending hugs your way. I'm cheering for a best case scenario for this whole thing. I'm glad they are moving forward with it all and addressing it all. Take care. Taria

I am all poked full of holes, have three hospital bracelets, and my back is just killing me from laying about on gurneys and hospital beds.

So Wednesday I went and had my bloodwork done, and the ultrasounds, and the chest x-ray. If I have to fast for tests I am by gosh only going to do it once!

Wednesday evening, yes after office hours, the clinic called and said that the doctor wanted to see me first thing in the morning. I did not feel that this boded well.

Much to my surprise, what she wanted to see me about was my hematocrit. I was _very_ anemic, the actual result on the test was 4. She told me "I am not understanding how you are standing up and walking around when you are this anemic!" Apparently 4 on that test is bad enough to warrant drastic action. Next thing you know I am in the ER with half a ream of paperwork. I spent about 12 hours in The ER being poked and prodded by five different doctors. One of them wanted to do surgery immediately and so they acted accordingly and starved me all day. They had me admitted by evening and I spent the night in the hospital getting two units of blood, while another half dozen doctors went over my tests. At least they fed me after I was admitted.

This morning I saw two more doctors and they discharged me. I go up to Roswell on Tuesday. Apparently the mass in my tummy is so huge that they could not tell where it started out from with just the ultrasound, so they did a CAT scan while I was in the ER. According to the doctors I saw this morning, all the tests have pretty much narrowed it down to three possibilities, but until they actually are looking inside me and then do pathology on the mass they cannot be sure exactly which one it is. The options are: An unusual type of fibroid, endometriosis, or ovarian cancer. I am rooting for fibroids.

Now I am going to go take a nap as they didn't finish getting the blood in me until about 2:00 in the morning, and the whole time I was hooked up to it they were coming in every half hour to check me out and make sure that I wasn't having a bad reaction. Tired am I!

NightMist