OT again - because my last message went who knows where...

Dont let it get bad again...Hugs and prayers to you

lyn

i'm assuming they dont think it is shingles? that would need anti-biotics. seems odd it comes back after all those tests and the new diet. sumpin aint right in paradise. amazes me what all they use prednisone for, so many things. not new soap/shampoo/lotions/laundry detergent? change in the water there? no one has been fertilizing around there by air? hmmmm, still thinking what it could be. something that only affects you, no one else....could be water or airborne tho. was gonna give you hugz but i'm guessing those'd not be appreciated now. ok, cyberhugz it is then {{{{{{Karen}}}}}}} j.

"Karen, Queen of Squishies" wrote ... Prednisone round has ended after six weeks worth. And now I am breaking out in itchy spots all over again, more every day. And I'm ON my new diet! What IS this stuff? So thoughts and prayers appreciated. I need to figure out what is causing this. Quickly.

Karen, Queen of Squishies

I'm not sure antibiotics would cure shingles....it's a virus, I believe? Though they might help prevent secondary infections. Steroids are really a wonderful drug group....I just wish they had knocked down Karen's seemingly allergic response to the point she no longer reacts to whatever the stimulus is. Thinking of you Karen. Head to the nearest Level 3 medical center if necessary. U of I Champagne? (sp...I always get it wrong). Chicago? St. Louis?

sorry, yes it is the herpes zoster virus. same one that causes chicken pox. seems is you've had chicken pox the virus can sit dormant in you to emerge and drive you bonkers when you're under extreme stress including the immune system being compromised. i read that lots of us will get shingles in our lifetime, usually in our later yrs but it can hit in our younger yrs too. t'were a dr that told me had mom been given the anti biotics or he must of said antivirual(i probly misinterpreted that) meds she most likely would not have had the complication of the residual pain that often accompanys it. she never got over that post hepatic pain and spent the last yrs of her life on pain meds for it. as she was grumpy from that pain, she was also on anti anxiety, anti agitation and anti depressants. the pain meds kept having to be stronger and stronger to be of any use at all eventually she ended up on morphine which eventually cut her appetite down to near nothing and her cause of death was called inanation. i had to look that up in a dictionary, even the funeral director didnt know when i asked him. its a vile or is that evil or both way to go.

j.

"KJ" wrote...

I'm not sure antibiotics would cure shingles....it's a virus, I believe? Though they might help prevent secondary infections. Steroids are really a wonderful drug group....I just wish they had knocked down Karen's seemingly allergic response to the point she no longer reacts to whatever the stimulus is. Thinking of you Karen. Head to the nearest Level 3 medical center if necessary. U of I Champagne? (sp...I always get it wrong). Chicago? St. Louis?

I was thinking Karen's in Texas - but she's not - and wondering why you were sending her there. You are quite right. It is time to go to where the best is. Good idea, Kathyl. Polly

could try using 1/4 cup white vinegar to 2 qts of warm water or that ratio to ease the itching and to help dry up the spots. i use pinetarsol here for any itching, works a treat. j.

"Karen, Queen of Squishies" wrote... Prednisone round has ended after six weeks worth. And now I am breaking out in itchy spots all over again, more every day. And I'm ON my new diet! What IS this stuff? So thoughts and prayers appreciated. I need to figure out what is causing this. Quickly.

Karen, Queen of Squishies

I spent five years on prednisone so I know a tiny bit about the affects. I started morphine for pain five years ago. Three times a day, every day. If I'm late for a dose I know it in half and hour. I also take a very, very mild form of chemo therapy to suppress my immune system, a form of quinine, an anti-anxiety med and sometimes an added anti-depressant. I'm frequently on antibiotics (Cipro three times in about 8 months) and still take bursts of prednisone. And spray it up my nose twice a day. I won't even begin to describe the things I do to provide moisture to various body parts that are so dry that it's not unusual to have spontaneous tissue splitting (think anywhere you body normally stays nice and moist).

I have a pretty good idea how I will die, and how many years this is taking off my life. I have a pretty good idea what my last few years will be like. Jeanne, even though I can't think of any truly good ways to go, I think vile and evil both fit the bill pretty well for what your mother endured.

Sorry for the outburst. I'm fighting this stupid, never-ending fever going on two weeks now along with the total exhaustion and screaming pain, and I'm exhausted and sick and really fed up with it all.

Sunny

It isn't shingles, it doesn't look or feel at all anything like that. And my Dr. said it isn't shingles too. I have to auto-immune diseases - Celiac, and Cushing's. My immune system is short-circuiting, and reacting to things that are, in other people, perfectly normal things. I have eliminated a good dozen more things from my diet, things that I wasn't tested for. Including OTC drugs, and my soap. Because they might be it, although I doubt if it's something topical. I see him again on Friday. If I have to be on a diet of water, I will. This is not going to go where it went last time. No way.

Karen, Queen of Squishies

sorry, Karen, i have no excuse. iir. j.

Did I miss something?

Karen, Queen of Squishies

no, nevermind, i miss everything and open my mouth too often. its me messing things up again. sorry. j.

"Karen, Queen of Squishies" wrote... Did I miss something? Karen, Queen of Squishies

J* wrote:

LOL! between the two of us I'm surprised we even speak English.

Karen, Queen of Squishies

i dont speak anything intelligible anymore (not sure i ever will again), not that there ever was much i said intelligible, if that is the right word even. (checked the dictionary and there is such a word and it is what i meant to say, bloody amazing) not to worry, j.

"Karen, Queen of Squishies" wrote... LOL! between the two of us I'm surprised we even speak English. Karen, Queen of Squishies

Oh Jeanne. I hope you're still reading here now. I saw an article in today's paper by Dr. Gott who was discussing a horrible struggle with itching rash. I tried my best to send the article to Karen but dismally failed. It's a happy successful solution that Karen might want to try. Can you show her how to 'get there'? You begin the search with: Dr. Gott July

(((((((Sunny)))))))))))) I said the other day that I'm sick and tired, of being sick and tired. I really am, after years of it. I'm very jealous of people who have loads of energy. Which is wrong of me. Don't be sorry for the outburst. We all need to vent. I don't know what your physical problems are, but you had my sympathy just on the prednisone sentence. I see how my sister suffers the side-effects but she has to take it anyway. I really wish for you more good days than bad ones. Hang in.

Sherry

I'm not Jeanne, but I think this may be it:

or . It's as simple as using Borax instead of laundry detergent.

I used to get itchy at night after putting on clean pajamas, but wasn't bothered during the day (go figure!). I switched laundry detergents from the cheap stuff at the grocery store to Seventh Generation Free. No more itchies at night. I also add vinegar to the rinse water of every load; I put it in the fabric softener dispenser. It is supposed to help rinse out any remaining detergent and helps with residual odors.

Julia in MN

Polly Esther wrote:

ya didn't need me, Polly. j.

"Julia in MN" wrote... I'm not Jeanne, but I think this may be it:

or . It's as simple as using Borax instead of laundry detergent.

I used to get itchy at night after putting on clean pajamas, but wasn't bothered during the day (go figure!). I switched laundry detergents from the cheap stuff at the grocery store to Seventh Generation Free. No more itchies at night. I also add vinegar to the rinse water of every load; I put it in the fabric softener dispenser. It is supposed to help rinse out any remaining detergent and helps with residual odors.

Julia in MN

Polly Esther wrote:

YeeHa! Julia, thank you. I was particularly interested in Karen seeing this because the victim had tried Mayo and assorted allergists and tests. We all want so badly to find a real and happy help for Karen. This could be it. Please. Polly

"Julia in MN" I'm not Jeanne, but I think this may be it: