Connie: Flare Response

RE:

I'm just starting to feel a bit more human since the beginning of Dec (total

flare)...< Butterfly

I don't really know what you mean by "flares" but I don't think you mean it

in a good way. :( < Connie

Reply:

Connie, I'm finally 'up' to answering. I had hoped someone else would do it for me so you wouldn't be left hanging. Not complaining...I just know that there are a few of us that cope with them every so often. Seems like this Dec/Jan has been a bug-a-boo for a number of us.

Best way I can explain a flare in 'simplistic terms' without talking down is to use your hand as an example:

Hit your finger with a hammer. It hurts, eases up and stops after awhile.

Now HAMMER your whole hand continuously, Non-Stop, day and night, and your pain med only takes the sharpness off the pain.

Try adding: ice/heating pad, and /or TENS machine and heating pad, and /or muscle relaxant meds, or long soak in tub (providing you can get out after), or alternate between all of the above and the only relief is they are now using a 5 lb hammer instead of the 10. Only GOOD thing about it, they usually let up....sometimes, its a short one that lasts a coupla days, sometimes, its a long one (from Dec 1 to this past Thurs), and sometimes, the pain starts harshly and very gradually eases up.

I went from signing the Christmas cards in Oct/Nov to NOT being able to hold a pen in Dec. Thankfully, I was done before it set in. IT affected the whole bod this time instead of 'the usual places'. I could type in short bursts because I didn't have to close my hands.

If ANY of you want to add to this, go ahead. I may not be as clear as I think I am...has to do with the Fibro fog mixed in for good measure.

Connie, if you have more questions, please ask. Think understanding each other is quite important when its only written and not face-to-face. Sometimes, on our bad days, we come across rather harshly on here without meaning to do so. Those of us that 'know' each other will send an email to the person asking what is going on....usually a pain factor is involved...and it doesn't even have to be a physical type of pain.

No, I didn't type this in one sitting--I'm not 'there' yet.

Butterfly (who KNOWS she is STARTING to coming out of it finally. I can close my hands today..no gripping power but that'll come back, too. I wanna QUILT!)

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Butterflywings
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nzlstar*

Quilt Fever

Butterfly (snicker snort)

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Butterflywings

I do worse if it's damp, no matter the temp. If our house was at 76 at any time, I'd be running around naked. If the stat shows over 65, I'm burning up! Gen

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Gen

I wasn't going to post, but it struck me it might be helpful. I have fibro, Sjogren's Syndrome and lupus. I'm sick a lot and have nerve damage in my face so constant pain in my face and the skin of my upper body. I've been on big doses of morphene three times a day as well as big doses of anti-seizure meds four times a day (for nerve pain). Other stuff.

I'm going off all my pain meds. Slowly, with doc's blessing (actually he doesn't believe I can do it). But I've plateaued. I'm only 50 and hope to live a long time yet. I can't continue to take larger and larger doses of narcotics indefinitely. So I'm weaning down. I'm down to two doses a day of the anti-seizure meds. When I'm off completely I'll start down on the morphene.

No, I don't hurt less. I hurt more. I've worked hard to learn meditating skills and other coping skills to deal with the pain. I'm going back on antidepressants. I am praying a lot. I don't know how I will get through good days. I can't stand to think about bad days.

There, I've taken off my clothes and twirled about so you can get a good look (eek, hide your eyes or go blind!).

I am erratic at best lately. And I have a hard time getting much done, even less than before. But I have to simply suck it up and live. Do not think I'm advocating this approach. On the contrary, I think most of us need more pain meds. Better treatment. I simply got to a point where it no longer made sense. So I'm trying something different.

If you have extra prayers any time, just send them my way. :-) Otherwise, just wanted to say this. I'm trying to let friends know. You are all my friends.

Hugs and hopes for pain-free days for all of us, Sunny

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Sunny

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