GOOD NEWS: Oma Update

Oma is a lot better, and the question of her surviving this has been answered by our prayers. She's being weaned off the respirator, has been breathing for short periods on her own, and will be out of intensive care Real Soon Now. Opa, two of my Uncles and my Tante Lia visited her yesterday, and she was talking and griping about getting outta there. (I take after my Oma)

Since we aren't going to have to take a grief-stricken panic trip to Germany, Bob and I hashed it out last night, and here's what we're going to do:

- Get me to the pulmonologist tomorrow to develop a game plan that will let me be well enough to go to Germany after Oma is out of the hospital, and home recovering. We're thinking 2-3 months.

- Talk to DD's teachers. Get her far enough ahead in school that a week or so in Europe won't be a problem.

- I have to actually follow doctors' orders for once, instead of trying to second guess them myself. (this will be hard for me)

- We're going to take a week or so before winter is over (so the pollen and farm stuff won't get to me), take DD, and go to Bavaria. For two days. Really. We're going to stay in the "hotel" in my grandparent's village, and just show our faces at the house. We won't stay there or allow them to wait on us, even though that will tick them off a little. Mostly, they want to be able to say that we came to visit them, and that they saw us, but entertaining us is far too much for them.

- For the rest of the trip, We're going to take it slow and easy. My favorite Lufthansa flight, which is always on-time and no hassles, which will get us to Germany in the early morning. Once we get to the airport, we'll rent a car, then drive a half hour to one of my other Tante's homes. (Mom has a lot of siblings - there are six of them, and one aunt lives quite near Frankfurt) I'll spend a day or three resting before we make the pilgrimage to Bavaria to see the grandparents, and do the same thing on the way back before flying home.

- We'll take all the medical crap with us. I try not to take the oxygen and the CPAP and the nebulizer, blah, blah, blah; but this time we want to be prepared for any contingency. I can always buy clothes there if I don't have room for luggage, but getting medical equipment and such could be more difficult.

Mom will be leaving in two weeks to spend a month or so in Germany. She's going to give my Tante Lia a much needed respite from taking care of Opa, who is out of control because he's so worried about Oma. Also, my mother can drive, and Lia can't, so that will be a huge burden off everyone. Mom is going to [gently] prepare my grandparents for the idea that I'm coming to visit, but that we will stay in a hotel [horrors - what will the neighbors think?] and that we do not need them to feed us. [I'm 41 and my Opa still tries to palm money to me when I visit - he's afraid I can't afford to gas up or whatever. And last time he tried to wash my car for me. How much of a jerk would I be to let a 90 year old guy wash my car?]

While we're in Bavaria, if I'm up to it, we can make the rounds and visit some of the other Tantes and Onkels. If not, then Bob and DD will go to my cousin's house, drop off something for the children and that will be it. If they're all ticked at me, so be it.

Thank you, thank you, thank you guys. DD would like to thank SaraJane especially, for giving her the idea to really fight to be able to go, and the ammunition that if "Mama's up to it, then I sure am." If Oma has a setback, heaven forbid, then we'll handle it as it comes up.

One bad thing, though. There's no way I'll be able to make it to Florida for the Tink-fest. Bob and I argued it from every perspective last night, and I had to admit that [for once] he's really right: I'm not well enough to do this, and he does not want to raise DD alone. If I hope to be able to see my grandparents while they're still alive to enjoy the visit, I have to do whatever it takes to get well enough. I hate to admit he's 100% right. I try to think of myself as invincible, but my body doesn't always cooperate.

Kathy N-V

Reply to
Kathy N-V
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Kathy,

These plans sound much more sensible!! I'm glad that your Oma will probably be able to go home soon, and that you and your family will be able to make a trip when you are much more capable of doing so from a medical standpoint. You really had us all worried sick there for awhile!

Carol in SLC My latest creation (11/12):

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Reply to
Carol in SLC

vj found this in rec.crafts.beads, from Kathy N-V :

]Oma is a lot better, and the question of her surviving this has been answered ]by our prayers. She's being weaned off the respirator, has been breathing ]for short periods on her own, and will be out of intensive care Real Soon ]Now. Opa, two of my Uncles and my Tante Lia visited her yesterday, and she ]was talking and griping about getting outta there. (I take after my Oma)

oh, GOOD!!!!! the results this group can generate always amazes me!

----------- @vicki [SnuggleWench] (Books)

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's not what you take, when you leave this world behind you;it's what you leave behind you when you go. -- Randy Travis

Reply to
vj

Oh, Kathy! You know you'll be there with us in spirit, sweetie... You just take care of yourself and I DO MEAN TAKE CARE OF YOURSELF.

Um. Yeah. I was yelling. Sorry. But please don't push too hard...

Reply to
Tink

I am glad that things are working for you.

Now, be a good little girl, and LISTEN to the doctors.

Geez, pay for a plane ticket, and I will come out there, and clean your house/etc, so that you wouldn't have to do that.

Sit, relax, and allow others to help you. Strange, I know. Ask to go out, but don't overstress yourself.

Enjoy your trip, but *DON'T* stress yourself on it. Listen to your body, and don't make a trip, if your body says no.

Mary

Reply to
meijhana

Kathy, I'm so very happy that things are working out for your Oma's recovery and for a big family trip.

I don't usually butt in (no, really!!) on other people's decision processes, but I truly feel strongly about this one---and *I* sure wouldn't want to be left behind. As I recall, you didn't like it much last time.

I want whatever it takes to make this a trip you all enjoy on every level possible and return from with not much physical cost to YOU. So, what can I/we do to help get you ready and keep you doing what the doctors say? Sarajane

Sarajane's Polymer Clay Gallery

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Reply to
Sjpolyclay

On Tue, 18 Nov 2003 11:55:50 -0500, Dr. Sooz wrote (in message ):

Okay, here's the deal - I just returned from the pulmonologist, and what I thought would be a routine appointment turned into a pretty intense four hour session. I told him that I wanted to come clean and stop trying to make things sound better than they really are. After we talked for a while about what the substance of my life really is versus what I've been reporting, I got some tests. We took a long walk down the corridor with the oxygen meter on me, and discovered that even a short walk leaves me dangerously short of oxygen, panting, and with a heart rate of 150+. The other tests weren't a whole lot better. We'll know the results of the blood tests soon, but if they're in line with what they have been all along, I'll be in for some pretty intensive, very expensive treatment that has a chance of greatly improving my quality of life.

I'm also scheduled to begin pulmonary rehab for a couple of days a week to help me get a little more stamina/energy. It might also help me drop some of the weight I've put on in the past months from the steroids. (I've gained 60 lbs. since August!) Long term, we're talking about pulmonary rehab for several months, followed by a daily modified exercise plan at my local YMCA. They have special programs for disabled people, and my doc will work with them so I can exercise enough to gain strength without endangering my lungs and heart.

I'll be back at the sleep lab sometime next month, because my CPAP needs to be recalibrated, and I'm having signs of problems from sleep apnea. I'll be glad when that's done, because the last time I got the pressure adjusted on the CPAP, it made a huge difference in how I felt.

The doc gave me a prescription for a potassium sparing diuretic, since I'm so swollen that I can barely put on my shoes. (It was the one that you guys recommended) He also gave me a prescription for an anti-depressant, and an appointment with a mental health counselor to discuss learning to live with all the things that have happened to me. We talked for a while about coming to terms with the fact that I'm unlikely to ever get better enough to go back to work, but that with luck, I could get better enough to travel again and drive.

We walked about Germany, and my doc agreed with you guys: there was a good chance if I went right now, I'd be coming home in a box. However, he feels that if I do this intensive treatment kind of thing (and it works), we can consider the low key trip I described in about 4-6 months. He said that with today's results (and these are way better than I was last week), he would not have cleared me to fly under any circumstances. I also got stern instructions to not go to my local hospital's ER again with asthma - he was horrified that I wasn't admitted two weeks ago. Apparently, I could technically be admitted right now, but since I'm actually on the upswing, there's no point in imprisoning me.

So, there we are. I'm totally exhausted from the effort of all the tests and such, but I feel hopeful that I can live a better life than the one I have right now. Bob and I had a long talk on the ride home, and he's feeling a lot better, too - he now says that he's confident that the doc has a clear picture of what he's seeing at home.

I think I'll go rest for a bit now. Thank you all for being so supportive and protective of me.

Kathy N-v

Reply to
Kathy N-V

Feel that big gust of warm breeze? Thats RCB.. heaving a deep and grateful sigh of relief. Thank you for taking care of yourself. There really is only one of you and we need you. The world needs you. More importantly, your family needs you. And Sarajane lost the recipe to make more of you. Diana ;-)

-- "Kathy N-V" > wrote

Reply to
Diana Curtis

And:

Oh Kathy!!!!! I am so VERY happy you were so brave and did this. Good on you, girl!!!!!! You've made me very happy with this news.

You are going to turn the corner now and get better, and find life more enjoyable. I'm feeling this very strongly!

So, if you are not to go to the ER anymore for asthma, what is the plan should it happen? I'm glad to hear your doc was horrified with your treatment there...

and I'm doing a happy dance for ya, even though its a version that's rather un-bendy today....

{{{{{{{{{{{{{{{{{{{{{{[[Kathy}}}}}}}}}}}}}}}}}}}}}}}}}] Sarajane

Sarajane's Polymer Clay Gallery

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Reply to
Sjpolyclay

On Wed, 19 Nov 2003 10:08:12 -0500, Sjpolyclay wrote (in message ):

God, I hope so. I'm having a very rough day today on the reduced dose of Prednisone, and am not feeling at all like myself. I keep telling myself that it will be worth it in the long run.

Yes, I am supposed to go to an ER, just not the one that's a half mile from the house. I have to go to one of the other hospitals (all about 15-20 minutes away) where my pulmonologist has admitting privileges. He will leave a standing order to admit me whenever I show up on their doorstep.

He doesn't practice at the local suburban hospital, so he doesn't want me there. It's kind of a crappy hospital anyway, but I've always gone there since it's a half mile away, and easy on the family to get me there and visit. Kathy N-V

Reply to
Kathy N-V

it will, it will, it will! Sarajane

Sarajane's Polymer Clay Gallery

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Reply to
Sjpolyclay

I am so glad to hear that there are treatments that may help you! My prayers and thoughts are often with you, and they are even more so right now and in the coming weeks.

Reply to
Kalera Stratton

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