Help, please.

I need to "talk" to someone who knows a lot about B-cell lymphoma, specifically cutaneous, or CTCL. Phone would be great, but we're in South Africa, so E-mail please.

Joyce n RSA.

Reply to
Joyce
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Vic, Joyce did say she needs to 'talk' to someone, the net isn't a someone and it is often time consuming and difficult to sift through everything to be sure you are getting good advice. Joyce is in South Africa and I think has a dial up connection, so straight forward emails from someone who knows would be far more applicable.

I did find this group you might find helpful Joyce

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Luck.

Reply to
lucretia borgia

Thanks, Victoria and Sheena, but Sheena is right. I looked on Google, and found some info, but there's so much of it, and it never answers questions specifically. My DH has just been diagnosed, and I was not with him, so he didn't ask any questions!

We'll see the doctor on Monday, when he expects to have the medication necessary. I'll go with him, but don't expect the doc to have all the answers. The dermatologist, seen in Bloemfontein a couple of weeks ago, sent the biopsies all over the country, because he wasn't satisfied with the negative results, he must have had a gut feeling about it.

I looked at that site, and found my question there, with your answers, but no more on this type. I'll look again tomorrow.

Joyce in RSA.

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> Good Luck.

Reply to
Joyce

Joyce, I haven't any experience with the type of cancer that you are needing information on. I did get tons of help when my husband was dealing with cancer through the email lists at

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They were wonderful and prompt. You can search their site for a specific email list dealing with B-cell lymphoma. I believe the different cancers are listed at the right of the page. Take a deep breath and a notebook to jot down information the Dr. gives you. It helps when you get home to have something written down to refer back to. Karen

Reply to
~Karen~

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