OT: Light at the end of the tunnel (Long)

Dunno how many remember me from a few of years back, but at about the time I drifted away from RCTQ DS2 had been diagnosed with a dislocated hip. By the time it was discovered he had started school and it should have been picked up at birth or at the latest when he started walking. The paediatrician we saw then said there was no problem, and for some time I believed him. Eventually my GP referred DS2 for an X-ray and it was as plain as could be :( We saw a local specialist that DH took against, so we were then referred to Alder Hey in Liverpool who are an orthopaedic centre of excellence.

In November 2005 DS2 had 5 hours in theatre putting everything in the right place and holding it there with pins, plates screws and a big plaster cast. The cast started at his waist and went down to the ankle on the bad side and knee on the good side, with a "broomstick" just above the knees to brace it all. He then spent 3 months in this "cowboy" position. Off school for a total of 4 months or so until he could walk steadily again. I developed arms like Popeye lifting him in and out of the car, the wheelchair (which also needed lifting in and out of the boot/trunk) and in and out of bed. By the end he had worked out how to walk in this set up!

After the plaster came off he had hydrotherapy for a bit and a year of physiotherapy to get him walking more evenly and it has been very successful. He can now walk for miles without complaining whereas before the two block walk to school was painful.

Anyway on 5th November he is back into hospital to have all the metalwork out and that should be the last invasive surgery for decades (until he needs a hip replacement which the surgeon predicts to be in his 40s). I shall then spend the next 3 months keeping him on "reduced activity" until the bone fills in the holes. He will be able to go back to school, but no PE until after Christmas and even then No Jumping. How am I going to stop this lively 7 year old jumping and doing all the usual small boy stuff???

So please can you keep him in your thoughts as November approaches and then I'll be asking for "keep still" vibes!

Lizzy Heywood, UK

Reply to
Lizzy Taylor
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So nice to hear from you Lizzy. I thought I saw you pop up a few days ago! Sending my best wishes for your DS and indeed all of you!

Reply to
Estelle Gallagher

Glad to hear it was finally figured out and things are on the fix. Prayers and hugs for your DS as he heals up from the metalwork. And many hugs and prayers for you as you try to keep him from doing all those things little boys love doing like rough housing, chasing the dog, climbing trees, jumping off the couch, etc.

Reply to
Charlotte Hippen

Sorry you've had all this worry, Lizzy. It has been good to see you dropping in lately. At least, at 7, though he might want to do all the rascally boy stuff, he can understand why he must not. So, a system of explanations and rewards I reckon might just work! . In message , Lizzy Taylor writes

Reply to
Patti

I remember you very well, and the beginning of your son's hip journey. What a long way he has come! We're so glad to hear of his successes! No jumping, eh? Might be time to get him started in piano lessons............... (yes, I'm affiliated - lol!)

Karen, Queen of Squishies

Reply to
Karen, Queen of Squishies

Reply to
Taria

I missed the initial message . But my heart goes out to you and your son. You have both been through a lot in the past few years. I'll be thinking of you during this time of his final surgery. I hope it goes very well and he heals quickly. It's time for him to be a kid!!! Hugs to all.

Reply to
KJ

Lizzy, I remember you! Welcome home! :) I'll be keeping good thoughts going for your DS as you try to keep him from overdoing things. Poor little guy to have had to go through all of this!

Reply to
Sandy

He will be able to go back

For sure! I'm new to the group, but I thought I'd chime in. A friend of mine's son was on a "no jumping" type restriction for a while when he was about that age. At first, they taught him a lot of games like chess and he enjoyed that kind of action and competition. Later, they discovered that he loved the "thrill" of amusement park rides and roller coasters, and by then the orthopedics people said that was okay, so he got his excitement that way.

Louise

Reply to
Louise

Thanks Louise. I would not have though of that! I will have a look at what is available near to us. At least there will be a lot of Christmas build up at home and at school which will help. Also it is not the time of year when the kids play out when they get home from school as it gets dark so early here.

Lizzy

Lizzy

Reply to
Lizzy Taylor

Lizzy,

So glad to see you! Based on my DS when he had open heart surgery as a toddler, I found that these guys seem to know what their bodies can handle. DS was rather quite and did not bother jumping off furniture or want to play on the swing until it was safe. I was shocked how I did not have to put too many limits on him-- he did it all himself.

Best wishes to you DS with his next procedure.

Debbi > Dunno how many remember me from a few of years back, but at about the

Reply to
Debbi in SO CA

Thanks Debbi,

Your son's surgery was much more serious than my son's. I realised when we were in the hospital for his first op that DS2's hip problem was just that, a problem. Some kids have so much more than that to put up with, with less positive outcomes. My heart bled for their parents.

Lizzy

Reply to
Lizzy Taylor

Give us a holler and we'll organize a post card brigade. YOU get a few world maps and have him FIND where they came from and put them in a scrapbook (it doesn't have to be fancy-HE does the fancy stuff) postcard on one side and info on the opposing page. That should keep him busy for a bit each day--if he gets multi in one day--keep a few back and give him one a day--even on Sunday.

Our RCTQ'ers did it for a lil gal that was going thru leg chemo--it brought her days of enjoyment. She couldn't sit long enuf for the compie so she had to look it up in hand held books, atlases, etc. She did a lot of gluing, glitter, stickers, pics of other things that particular place was noted for.

Butterfly (speaking for others on here )

Reply to
Butterflywings

That would be great. I'll post a message nearer the time - when we have had his appointment confirmed in writing (other then the post-it note stuck in his hospital file - I know it is there 'cos the surgeon showed it to me!). My address is in some old directories but I will also email it as requested and I authorise others to release it for this project.

Thanks so much

Lizzy

Reply to
Lizzy Taylor

I'm pleased that you approved. I hope it helps.

Butterfly

Reply to
Butterflywings

Lissy: Yes, I do remember you. I'm sending prayers for successful outcome.

From the mom of two boys who were once very lively 7 year olds: the suggestion of a wise pediatrician: 'when he takes a rest, YOU take a rest too!'

PAT in VA/USA

Reply to
Pat in Virginia

Lizzy... we never "met" as i'm a newbie, but can sympathize with your situation, but not with a child...my mom had heart surgery a few months back then had her feet corrected surgically....needless to say.. she didnt have much patience after each episode and everyone in the family had to come up with ideas to keep a 78 yr old busy mentally, there is just so much TV one can watch.It was a good thing she likes needlework and reading. we also helped her with a scrapbook project. the postcard idea is awesome! i'd be more than happy to send your son one! it sounds like the hard part is over and the surgery coming up is not as bad. i'll say a prayer for you and DS. amy

Reply to
amy

When he takes a rest, I play with fabric - does that count?

Lizzy

Reply to
Lizzy Taylor

I hope things have improved for her (and you) since both surgeries. I don't think that lot would improve anybody's patience.

Thanks!

We do think the worst is over, but I will be "on pins" after the op until I know his bone strength ha recovered.

Again, thanks. All T&P will be gratefully received.

Lizzy

Reply to
Lizzy Taylor

Reply to
Pat in Virginia

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