OT: Upate ( medical advice for IBC)

Get that taken care of NOW!!! Most doctors will accept small monthly payments and hospitals have programs to help out people without insurance. We haven't had insurance in over 3 years and I have never been denied treatment.

Gads, Christina, Too Much Information. Way Too Much Information.

If you th> I haven't gone into what has gone on this summer, but we have had a lot on

Christina, I am so sorry to hear about all of this! You are a gem. Truly! Call your doctor back and see if they have any other suggestions to get you help more quickly.

You might also consider that your husband is a problem and you may need to leave for your safety. For him to suggest that money shouldn't be spent on your health is a terrible and abusive thing.

might be able to provide you help while you get the medical attention you need.

marcella

Oh Christina, I'm so sorry you have all this rotten stuff going on.

As if it was your choice to get sick - and you only have one kidney because you fell and had the injury while you were helping ... .... Grrrr.

I know little about your various health systems, so I can't help there; but do take note of what Mary said, and get something done. You can't just let it go - even if it is *just* an infection? Infections can spread and get worse.

You really must get yourself tested, whatever it takes.

However much stress your husband is under, he has no right to belittle you. That is one of the things I remember from your first messages to us, that you were scared of quilting because you had been told that you were useless and couldn't do anything right. The underlying problem with all these infections that you are suffering could well be stress-induced.

Please, please get to a doctor and get this infection cleared and then a mammogram done. There must be a way. You can't be the first person to have encountered these situations.

Also, double please, come back here and let us know how you are getting on, and what you were able to do.

Never forget that you have real friends here, although most of us are unable to do anything actually to help.

Do take care, . In message , Christina in OK writes

snipped

(((((HUGS)))) makes my day seem like peanuts.

Dear Christina, Your health is in danger, and perhaps your life. Do you have family, friends, anybody who could help you see what needs to be done? You have shared a great deal of very intimate information, so I am going to be very direct an intimate in return. Leave your husband, today. Contact your local cancer support association. They will help you get your health under control. But first, leave your husband. He is a classic abuser and you have become inured to the abuse to the extent that you feel you deserve it. I can't help you beyond this, dear. Quilting, sewing......these are subjects for breezy summer days. What you have shared is something far, far darker. I will keep you in my prayers and thoughts.

Sunny

Another mammogram option may be through the Komen Foundation (or they may already be funding the one through your health department). Maybe this page will be useful to you:

Please also notice the 800# on the bottom of the page.

1-800-462-9273.

Your symptoms need to be checked out but please don't diagnose yourself! Mary

Well said!!! I agree totally. Stress causes any number of illnesses. You deserve better.....find a women's shelter...something. Just get out and get help now.

Betty in WI

Howdy!

Darlin' Rose, in the friendliest way let me point out that this is marked O.T., and it's a very long note, as these things go, and one could stop reading at any time. ;-)

Christina, this sounds like an abusive situation in several ways. Get the help you need; we're here to support you. Hugs, Ragmop/Sandy ---not intending to offend Darlin' Rose or anyone else

Christina,

As many of the other ladies have said, it does sound like you are in an unhealthy situation with the way your husband is treating you. It sends alarms ringing in my head. Abuse doesn't always have to be physical - it is also verbal. There are many Battered Women's Shelters around & I'm sure you can find an 800 number to call & speak to someone about your situation. Equally important is your medical problem. I would talk to your doctor's office or call your county health department to see what can be done. Whatever it is, the antibiotics don't seem to have resolved the problem & if it is something more serious, the sooner you get it taken care of the better. It may be as simple as asking the doctor to call you & you tell him what your concern is. He may be able to put your mind at rest or find you the help you need - just try it! Will be sending positive energy your way - if you don't take care of yourself, nobody else will!

-- Pauline Northern California

I did stop reading. But what I did read was highly inappropriate. I

*really* don't know why people post such deeply personal and extremely graphic material in such a public place. You might as well print it out and tape it up in the public library. *It's the same thing.* This is a quilting newsgroup, not a cancer support center.

I know I'm going to get hammered for this, but it needs to be said. Forpetesake, there are HUGE boundary issues going on here when people post this kind of material. It's not that I'm unsympathetic, it's that I'm appalled at the lack of discretion and absence of boundaries. This

*isn't* a quilting frame, however much we want to pretend it is. Get a grip on reality -- it's NOT a quilting frame. It's a public bulletin board. A *highly* public bulletin board. It isn't an appropriate place for graphic descriptions of infected boobs or detailed blow-by-blows of medical treatment. I've said before that you might as well announce it from your courthouse steps, and for all you know, you are. None of us should post anything we can't say in a public place in front of strangers, because that *is* exactly what we're doing.

Christina, First of all, you must make yourself the first priority and get out of there. I hope you have friends or family that will shelter you. Secondly, is there a county hospital in your city that will treat you free or at a very reduced cost? (In Dallas we have Parkland). Don't wait! You might have something very simple to cure if treated properly. Call your doctor and see if you can go in and a have talk with him and make some kind of financial arrangement with him. I hope things get better for you.

Linda in Tx

Sunny -- so well said. A quilting group is not the place for medical advice...you need to get to a clinic or even the hospital, ASAP. CHRISTINA PLEASE READ SUNNY'S POST AGAIN!! TAKE CARE OF YOURSELF- FOCUS ON YOUR SELF RIGHT NOW.

And for those who think Christina posted too much info I would say don't judge another untnil you've walked in her shoes...as far as we know Christina may have absolutely no one else to talk to.. or even a car to get around...and frankly she sounds SCARED. Show a little empathy and patience. If you don't like the topic then killfile it.

In addition to my earlier post here's some site for Inflamatory Breast Cancer. THIS IS VERY serious...go get checked NOW.

I Have read all the post,

sometimes life doesn't go down as we wish, for many reasons

Breast cancer kills plan and simple, from the site getbcfacts.com they say we have app. 3 million in the US with breast cancer ( with about 2 million diagnosed and one million undiagnosed)

I do not have breast cancer but I do have the signs and symptoms with IBC.. a very aggressive type. I still do not know what I have, and I do have to wait..

but on this note, DH is trying right now to find a job with benefits now.. with that being said... sometimes life gets too hard be bear on your own and Yes as so many people here have said, this is about the only outlet I do have to express how I feel, and what I am feeling. I posted because I am in desperate need of advice for my symptoms, since I cannot seem to find the answer anywhere else. As I said if I can help one person then my "open post" is worth it. wither it be in a bad marriage or with cancer.

I wanted to know if anyone else have had this, or if not . IBC is something that you cannot play around with, and everyone needs to know and if you read this.. and have redness you may want to think twice about it.. If it is only Mastitis, then that is wonderful, but if it is something else, he needs to be seen about.

I was upset about a few post here, but I will not drop down to that level.

This use to be a caring, loving group, but things change just like everything else does in life, and I have decided that I am going to be leaving this group.. Too the ones I do know here... I will miss your friendship and laugher, the good times and the hard times. Some of you are very dear to my heart

to ones who do know me, and wish to get in touch with me, let me know and I will see If your listed in the RCTQ Dir.. I will contact you from there. On the 27th of July I will remove the group from the newsgroups. So I will read until then.

Much love to everyone.

Some women who have inflammatory breast cancer may remain undiagnosed for long periods, even while seeing their doctor to learn the cause of her symptoms. The symptoms are similar to mastitis, a breast infection and some doctors, not recognizing IBC, will prescribe antibiotics. If a response to antibiotics is not apparent after a week, a biopsy should be performed or a referral to a breast specialist is warranted.

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Christina, I haven't read a lot of the posts lately - like you said sometimes life just pulls us away from the things we love. I am so sorry to hear of what you are going through and I am honoured to be what I perceive to be part of a lifeline that you have. Please don't cut yourself off from that lifeline for the sake of one or two people.

As we all know, sometime the written word can come across dfferently to what we actually want to *say*.

What I want to say is that I enjoy your pots, I treasure your friendship, and will always want what is best for you. I hope all goes well and I sincerely hope that you do stick around. If you don't please email me - I'm in the directory or just hit reply.

I just wish I was a bit closer so that I could give you the hugs that I think you need. Take care Christina and please keep in touch.

Your friend

There are many messages posted on this site that are not quilting related and as long as they are identified with the OT for "off topic", folks should be able to post what they feel they need to share. We have had many off topic postings related to all kinds of stories - some happy, some not. Christina shared her story with us because we are her friends and friends share the good, the bad and the ugly. In relating her story to us in the first person, I saw her purpose as warning us of this very serious form of breast cancer. Not everyone has access to top notch medical care, full coverage under a medical plan or a financial situation to fight this disease or others. Cancer doesn't screen it's victims first. Anyone of us could be walking in Christina's shoes. You may not want to read the non-quilting messages and that's ok too - ignore the OT postings. But let's at least show some compassion for those that chose to use the OT option to share a personal crisis.

I read every word of your messages, Christina. You are in my prayers. We are here for you. {{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}

You're leaving ALL of us, because of ONE negative response to your post??? Is it necessary to do that?

Karen, Queen of Squishies