Way OT: I'm at Mayo and afraid

Long story short(ish), I was only suppose to be here two days and will be here a total of 4 (so far anyway). Most of you know I have rheumatoid Arthritis (diagnosed 1982) and have had many insensitivities to many meds and a proclivity to infections which makes our local hospital my second home. Anyway, I came down here on the 14th to see my Rheumatologist about a new med and also to follow-up on symptoms I've been having since my hospitalization the beginning of Dec. He didn't like what he saw and made appts this week for several consultations, especially Neurology. I saw her yesterday morning and my world began to turn upside down -- I have since had a brain MRI (btw there is proof of life on planet Earth, I do have a brain! :-p), and deep muscle EMG (I have had more fun!) and this morning I had a lumbar puncture (better know as a spinal tap). Tomorrow I'm having something called a sweat test and then I see my neuro. again. Now the reason I'm afraid (as if that stuff wasn't enough), they believe I have a demyelinating disease and most probably MS. I spent yesterday late afternoon on in tears and a good portion of today as well. I saw my Rheumy last night and he was wonderful and incredibly supportive. I've been doing my homework and that's helped some but it's been rough trying to wrap my brain around all this. If I dare even think about my future it becomes even more terrifying so I try to stay in the here and now and deal with whatever is in front of me, one step at a time (so to speak [I'm in a power wheelchair full time ;-)]). The more I write about it or talk about it the easier it gets, so here I am. Thank you for letting me express this to you all, it helps. You all are excellent therapists and a whole lot cheaper (I hear your easy and can be had as well [gosh I love being a pot-stirrer])!

-- Dreamweaver - I can do this, I can do this, I can do this........

*********************************************************************************************************************************************** Everything on the earth has a purpose, every disease an herb to cure it, and every person a mission. This is the Indian theory of existence

Mourning Dove Salish

Reply to
Dreamweaver
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sending prayers and warm thoughts

Reply to
maryd

Thanks Mary. Much, much appreciated.

DW

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Reply to
Dreamweaver

Dreamweaver, yes, you can do it!! Prayers are being sent your way from NH.

Denise

Reply to
Denise in NH

I gratefully accept from MN. Thanks Denise.

DW

Reply to
Dreamweaver

(((((((((Dreamweaver)))))))))))) I will keep you wrapped up inside my prayers and good thoughts. I cannot imagine how scared you must be. But I believe you have within you already found the key: stay in the now. None of us knows what the future hold. Today is what counts.

Love and prayers, Sunny

Reply to
Sunny

My best to you too Sunny. You've been through it too. We're a couple of tough 'ol broads (and I mean that in the best manner possible!) aren't we?! ;-)

DW

Reply to
Dreamweaver

Sorry to hear this news, but glad that you are where you are. I am doing my level best to warm up the weather here and send it on to you.

Connie in frigid ND

Dreamweaver wrote:

Reply to
Connie Einarson

Much love and huggz and extra prayers being sent your way for all this scary stuff. You CAN do it, and we're here to help.

TerriLee in WA (state)

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Reply to
TerriLee in WA

Sending good thoughts, prayers, and gentle hugs ... you are not alone Miss Dreamweaver! Pat

Reply to
Pat in Virginia

Let me take a peice of that fear and throw it up to Jesus with a prayer....heaven knows you deserve all the love and prayers that come your way.

Chin up, kid. We're all here with you!

T & P's comin' yur way...

amy in CNY

Reply to
amy in CNY

Huge numbers of purrs sent your way that it isn't MS, and if it is, that it does not progress!

Martha

Reply to
Martha

Omigosh! Prayers and good thoughts on their way from IN...

--Heidi

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Reply to
heidi (was rabbit2b)

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