INFLAMMATORY BREAST CANCER

THANK YOU. I *will* be forwarding this information to all the women I know and care about.

Leslie, Missy & The Furbabies > I purposely didn't mark this as an ot post because I wanted to make

There is some negative feedback to my post over at RCTN as some feel it is a bit like scare mongering. I know that this info goes around the net periodically and I know that this is a rare form of breast cancer. But none of that matters when you realize that there are a lot of women out there who have no idea there is more than one type of breast cancer, regardless of HOW rare the other type is. Knowledge IS power and we ALL need to be reminded of this cancer. CiaoMeow >^;;^<

PAX, Tia Mary >^;;^< (RCTQ Queen of Kitties) Angels can't show their wings on earth but nothing was ever said about their whiskers! Visit my Photo albums at

Howdy!

We discussed this here, last year. Nothing wrong in posting a reminder.

R/Sandy

Tia Mary,

Thank you for posting the information on inflammatory breast cancer. Unfortunately I am learning more about IBC every week because my sister (54) was recently diagnosed with it. Inflammatory breast cancer is very different from other breast cancers and is often misdiagnosed because it isn't detected by self exam or a mammogram. It is a very aggressive nasty cancer and the survival rate is around

50%. My sister didn't respond to any of the first line chemo drugs and was switched over to a drug that hasn't yet been approved for stage 3 breast cancer. It is very important that women, especially younger ones, know about IBC and it's symptoms. Again, thank you for posting this information. Sambo

HMMM -- maybe your newsgroup provider doesn't show the author of a post along with the title. Since I am a regular here, anyone seeing my name as the author of the post would likely have known that it was not spam. Yes, I purposely shouted by using all caps in my subject line and I don't apologize for it. I didn't use OT in my subject line as there are loads of people who filter their posts and never see ones with OT or Off Topic in the title line. It's a shame you seem to have been so offended by my post. I also can't imagine WHY anyone would consider it scare mongering but you are welcome to feel that way.

PAX, Tia Mary >^;;^< (RCTQ Queen of Kitties) Angels can't show their wings on earth but nothing was ever said about their whiskers! Visit my Photo albums at

I'm not offended at all by your post, I didn't watch the video, but I did read the information and google to find out some more information. My suggestion was that the things you thought you were doing that would encourage people to read it might actually have the opposite effect. If people want to filter for OT, that is there choice to make, either they are content never to be provided with any information other than what they choose to access themselves, or more likely they have many many opportunities for being fed information and want to be able to choose when they are just accessing info about a specific subject and when they settled down for a session in a quilt group wanted it to be just that. The vast majorities of servers, readers etc will show the author, but mostly further along in the reading sequence, so I good number of people will see capitals and skip on to the next post. A lot of people read through google groups, I checked to see what it looked like on there - the author is in pale gray after an extract from the message. A good number of people will recognise your name, but many won't even get to determining that or not, as they are already on to the next message.

I'm not telling you not to post something like this, I'm actually trying to help you make the message reach more people.

Anne

Picky, picky, picky!!!!!!!! I found it a waste of time to read through all your so called "corrections". Too bad one has nothing better to do than criticize someone that was trying to be helpful. Gen

Howdy!

Oh, for corn's sake. Of course we all had the option of whether or not to read this or any other post. It's all right there in the subject line. If YOU don't want to read it, move the mouse. ;->

Meanwhile, Tia Maria has gone back to Finish that white silk quilt, for which we are all waiting pictures, while she cogitates over the info she has received this week about health issues.

Cheers! R/Sandy --who recently learned that a friend's s-i-l has breast cancer, and will be giving him a quilt for her, a nice, warm, soft quilt

*snip* *snip-snippy* polite-shmolite---"pretty is as pretty does", quoting Mz. Patsy Pylant, my 5th grade teacher.

you don't get it, you didn't have to read my post, nor did anyone have to read Tia Mary's, but she seemed so passionate about the subject that I was suggesting that she might have achieved what she was aiming to do, i.e. informing more people if she'd gone about it in a different way.

Anne

heck, she was the one that moaned people on another group were giving her negative feedback and suggesting that she was scaremongering. I DID want to read it, but because of the format, the kind of automatic prescreening your brain does on a huge long list of unread posts, almost placed it in the don't read pile, for whatever reason, I looked again, I did read it and I did find it helpful, my hope would be that by respecting standard newsgroup courtesies, i.e. not using all capitals and inserting the OT marker. There is no getting around the fact, that in life, how you say something is as important as what you say.

In the hope that one more message will make one more women aware of this condition, I'm posting a link to the Mayo Clinic information on this disease.

the Inflammatory Breast Cancer Research Foundation doesn't have the most readable website possible. Cheers Anne

Mmmmm, Mary, I think you'd have to consider the source on that one and not be too bothered by it.

If _she_ would have posted it, it would have been a huge deal, but since it was someone else, well, that just wouldn't do.

I've not been hanging around over there nearly as long as most and I _never_ post, but I love seeing the work that is done. It just didn't take long to figure out who the Divas' were.

Cindy